Wednesday, June 30, 2010
Thursday, May 6, 2010
Sunday, November 15, 2009
Wednesday, October 14, 2009
So instead of getting out at 1, we left at three and went straight to Cafe Londonderry in Stuyvesant Plaza for their great Pumpkin soup! This was due to in part to Barb only taking Cheerios to munch on during the infusion, and thinking she would be out at 1:00 p.m. in time for a normal lunch. It was also due to the fact that we love the Londonderry! Without this becoming a restaurant review, let's just say that whenever I have out of town guests during conferences, including the time I hosted a delegation of Hungarian and Slovakian dignitaries from their education system, I took them to the Londonderry for their "special" American meal!
Barb met a new friend at the infusion, a fellow quilter with whom she exchanged contact info. Barb can make friends anywhere - easily striking up conversations and putting the other person at ease. Definitely one of the things I love about her.
There are a lot of things to be happy with about this second infusion, especially since we both had a few concerns about the unknown.
For instance, was this round going to be harder to deal with because of the cumulative effects of the "Kemo Sabe Cocktail?" Or would she be better prepared for the experience having been through it once already? I think it is more of the latter, since she has been strong and smiling since she came home, helped in part by the many cards, phone calls, and visitors who all bear the same message - you are loved my many, many people.
Some of those well - wishers have kept her up to date with school goings-on so very well, that she is very excited about returning to work in the spring. Maybe not as excited as her students and colleagues would be to see her, but that remains to be seen!
Thank you everyone, for being part of Barb's healing team.
Friday, October 2, 2009
Thursday, October 1, 2009
Tuesday, September 22, 2009
To mitigate the psycholinguistic effects of the term ascribed to this process, I've started calling it "Kemo Sabe' - words from the old Tewa Indian dialect that were uttered by Tonto to the Lone Ranger beginning with the old radio show of the same name. Words whose meaning has been debated by scholars for decades.
According to the son of the man who wrote the scripts for "The Lone Ranger" show, "Kemo Sabe' " means "Trusty Friend," or "Trusty Scout." I think both meanings fit. The room, the staff who work there, and the whole process, each is a new friend to walk beside us on this journey; more importantly, each one contributes to a unified vision of the road ahead - one that will be full of turns and surprises, but a road that also leads to a better life and new vistas to share with all of our "Kemo Sabe's.'
Saturday, September 19, 2009
Barb has been home for a week now and you can definitely see and hear how much better she feels he positive difference in her. She’s back to doing almost everything she was doing before the surgery, despite my best attempts to get her stay put! She is still resting a good deal of the day and enjoying the extra time to read all of the cards from her friends and family, reading her new Kathy Griffin book, pet the cat. and generally taking things in stride, doing a bit of food prep here and there, as well as washing clothes. She wants to feel independent again after having spent so much time tethered to a hospital bed. Those were not fun times.
We had “the big meeting” with Dr. Morrissey, the Gynecological Oncologist this Thursday and heard some excellent news! Barbara will start her chemotherapy treatment this Tuesday. Her treatment schedule will be: one week of Chemotherapy, then three weeks off until she has had the complete program of 6 treatments. Lots of people want to know the stage that she is in. We look at that a bit differently – the stage is just a number and letter that carry a lot of stigma. Better to think of the healing process and the ultimate goal, rather than the absolute stage
It is our hope that this treatment, coupled with the right foods, the right exercise, and the right amount of love and prayers from family and friends, that she will win this fight.
As the weeks wear on, Barbara will feel like doing a little bit more each week, but she will also need continued help and support from her friends and colleagues. To all of you, thank you for the kind words and cards and for all of your support. To those of you who said you are willing to do anything to help out, we will be in touch!
Sunday, September 13, 2009
Today's goals are to rest, heal, and gain strength. We are hoping to be able to go out on the patio together and sit for a while to enjoy the garden and the weather. She still tires easily, even after a few minutes on the phone, but she is hoping to reach out to everyone soon. Barb has made a few phone calls to family and friends, and entertained a few visitors from the neighborhoods who came bearing gifts of food and flowers and most importantly very good will and love. Thank you Dorothy, Robin, Kathy, Joanne, and Clare and Dana!
Also a big heartfelt hello and a "shout out" to Sharon Raimondi and the NYSCEC Board and to Jim Stowell, Marcia Atwood, Mike Schulman and the CNYSEA board for the lovely flower arrangements. They mean a great deal to us to be able to look at their beauty and remember that so many people are sending their thoughts and prayers to Barb to help her heal.
We are looking forward next Tuesday's appointment with Dr. Morrissey to discuss further treatment options - more on this next week!
Take care, everyone, and feel free to leave a comment here!
Saturday, September 12, 2009
She is feeling much better but still not ready for all of her friends to visit. Please email or call me first and we'll let you know how she is feeling.
Ok, well I am off to do some errands. My sister is here and keeping Barb Company and keeping her in her chair so she doesn't get up and try to do too much!
Thanks everyone for the cards and flowers , thoughts and prayers, and well wishes and food!
With love and respect,
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